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Have I Had One Options
AnnieB
#1 Posted : Tuesday, May 25, 2010 5:00:59 PM Quote
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Dear All

Could you please explain to me what you consider a flare up to be, as I'm not sure if I have had one. The most I have had is a hand, wrist, knee and ankle all swollen and extremely painful at the same time, it normally starts late afternoon and by bedtime I can hardly walk or lift anything, I have a sleepless night but by the following morning although still feeling stiff and swollen and slightly bruised I can move and begin to lift things.

Anne x
LynW
#2 Posted : Tuesday, May 25, 2010 9:08:43 PM Quote
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Hi Anne

RA is usually a chronic relapsing condition. Chronic means that it is persistent. Relapsing means that at times the disease flares up (relapses), and at other times it settles down. There is often no apparent reason why the inflammation may flare up for a while, and then settle down again.

A flare always affects several joints as it is a dysfunction of the immune system rather than inflammation of only specific joints. You would feel very ill, as though coming down with something like flu, and quite possibly unable to get out of bed! It can last anything from a week or two to months depending on how quickly the disease can be brought under control again. With the current treatment methods 'flares' will be become less of a symptom as the disease will for the main part be kept under control. However stress, other illnesses, failure of medication can lead to a 'flare'.

What you seem to be experiencing is either RA that is not fully controlled by the meds which may need reviewing or overuse of joints that need to be rested. RA that is controlled properly doesn't generally cause these problems unless you have permanent joint damage then you get pain but not usually inflammation!

Hope this helps!

Lyn x

My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

AnnieB
#3 Posted : Tuesday, May 25, 2010 9:41:33 PM Quote
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Thanks Lyn, it certainly has helped and I seem to have got off lightly so far. Anne
LynW
#4 Posted : Tuesday, May 25, 2010 9:45:00 PM Quote
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Anne, you will be absolutely fine! Just try to take it easy ... at least some of the time!!

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

MaryLewis
#5 Posted : Wednesday, May 26, 2010 12:37:05 AM Quote
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Hi Annie
when you get up in the morning please do not lift any-thing too heavy
sadly yes you are having a flare
dont over do things you will get to know what you can and cant do
just take it easy for a while
Mary L
LynW
#6 Posted : Wednesday, May 26, 2010 8:04:16 AM Quote
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MaryLewis wrote:

sadly yes you are having a flare


And sadly contradictory advice can be very unhelpful!

Anne is recently diagnosed and so far has had only 4 doses of methotrexate. She is still waiting for the drugs to kick in, which I'm sure they will, but as you know it can take a few months to feel the benefits. In order to have a flare you have to first have gone into remission; this hasn't yet happened for Anne. She may be lucky and never have a flare; I've had RA for 22 years and flares for me are uncommon. That's not to say I haven't had a lot of joint pain, inflammation and consequently a host of changes in medication!

I imagine Anne is still trying to come to terms with how she needs to adapt to life with RA. I'm sure she will get there but that too takes time. I answered the post with generalised suggestions and known facts. To specifically state that someone is "having a flare" without medical qualification is inappropriate and misleading.

Sorry Anne if this is confusing for you. It is hard to know just what is going on with your body when it's all new to you. I would suggest that if the problems do seem to be continuing for much longer, it might be worth asking your GP for something to help until the methotrexate 'does its job'. Take care,

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

MaryLewis
#7 Posted : Wednesday, May 26, 2010 9:23:17 AM Quote
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sorry about that Lyn
I do know it takes up to 16 weeks for the MTX to kick in I have been on it for 14 years
when I was first told I had RA in the first few months I did have a few flares
I wanted Anne to know this is normal for some and you can get over it
ok
Mary L
AnnieB
#8 Posted : Wednesday, May 26, 2010 10:13:13 AM Quote
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Thank you so much for the advice I can assure you it really does help to know that what I am experiencing is normal for RA. Taking my fourth dose today and I've just brought some ginger nuts, half price in one stop. Anne x
MaryLewis
#9 Posted : Wednesday, May 26, 2010 10:51:04 AM Quote
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Hi Anne
I take cod liver oil 1000 omega
I dont know if it helps but if you want why done you give it a try
and when you are doing things around the house etc only do a bit dont over do things
I use to do things and dident stop until I was in pain (I thought I could just go on as I use to) you will learn how to spread things
I also thought so what if I do not finish doing the ironing or hoovering or any-thing else it will be here tomorrow
take it easy
you need to get your head around this
take care
look forward to getting to know you better
Mary L
Lorna-A
#10 Posted : Wednesday, May 26, 2010 10:53:09 AM Quote
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Good post Lyn, Explained very well, Anne hope you don't have to wait too long before the methotrexate kicks in. I remember it well, try to keep a diary of how you feel, it is good as you can look back and see yourself getting better. I found that a great help, I kept mine going for around a year. Thinking about you Lorna x
LynW
#11 Posted : Wednesday, May 26, 2010 1:21:36 PM Quote
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MaryLewis wrote:
sorry about that Lyn


Dear Mary

Thank you for that. I had something of a shock when I opened my 'inbox' this morning; you will see my post! Didn't mean to sound so snappy just really upset. Sorry Mary,

Lyn x

PS Thanks too Lorna! x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

MaryLewis
#12 Posted : Wednesday, May 26, 2010 1:50:43 PM Quote
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ok
thanks Lyn
take care
Mary L
Julia17
#13 Posted : Wednesday, May 26, 2010 5:53:10 PM Quote
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Hi Lyn

You are never snappy, its just that you show great concern, you are very kind and caring person.

Love Julia x BigGrin
amanda_lewin
#14 Posted : Wednesday, May 26, 2010 10:12:48 PM Quote
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Meds take a long time to get into the system and begin to work. Sadly with RA being an auto-immune disease one has to try sometimes many different types of meds until they find one (or three!) which suits them...

The recommendation of cod liver oils or fish oils is excellent as they have been proven to help with inflammation and joints and are generally a good supplement to take!

When I first began on MTX they took a base line bloods and gave me a large steroid jab in the behind which brought down alot of the inflamamtion and helped the MTX get to work. It can take a long time though so patience is a virtue with RA!

Love,

Amanda
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